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It is projected that 90% of individuals who die of HSAN1E don’t even know they have the disease. One of HSAN1E Society’s goals is to help fund genetic testing for individuals who desperately need a diagnosis. Just by getting a diagnosis individuals suffering from DNMT1-complex disorders will be eligible to receive services and the medical care that they so desperately need. Your donations will help fund testing for those individuals.

Donations will also help fund important and groundbreaking research. Currently HSAN1E Society is in contact with a group of researchers from the Mayo Clinic in Minnesota. They are working diligently on HSAN1E and other DMNT1-complex disorders. In addition to understanding more about these disorders, the disease process and the gene that causes it, they hope to one day develop therapies for those families that are affected.Tooltip Text

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Donation Total: $25 One Time

Donate to HSAN1E Society

Help Make a Difference:
Donate Today!