Board of Directors

HSAN1E Society

Board of Directors
HSAN1E Society

Board of Directors

Rachelle
Rachelle Dixon – President

Rachelle is one of the co-founder’s of HSAN1E Society. She is a wife and mother of two. Rachelle grew up knowing there was a rare disease in her family, it wasn’t until 2015 that she learned the name of it. She was a caregiver for both her sister and brother. Rachelle is passionate about advocating for rare diseases and HSAN1E families.

Krista
Krista R. Hemming – Vice-President

Krista is a Southern California attorney, co-founder of HSAN1E Society and a rare disease advocate. Krista grew up in a family affected by HSAN1E. She lost her mother, sister and brother to the disease. Krista is proud to serve as the Vice President of HSAN1E Society, and advocate for our community.

Matt
Matt Collins – Secretary

Matt Collins is professor of Psychology at Nova Southeastern University in Fort Lauderdale, FL. He is married with three children and his younger sister was diagnosed with HSAN1E in 2012. He is passionate about educating others about the disease, advocating for those suffering (and their families), and is ready to do what he can to help advance the mission of the organization.

Dan
Dan Dixon – Treasurer

Dan has been the Treasurer of the HSAN1E Society since it’s inception in 2015. Dan has 13 years of business experience as a restaurant owner and six years of experience as the treasurer for a labor union. Dan is the husband of HSAN1E Society President Rachelle Dixon. Throughout their marriage Dan has been closely involved in the care of several afflicted family members.

Earl
Earl Lindgren – Member at Large

Earl has been a board member at large for the HSAN1E Society since 2015. Earl has seen his wife and three children pass from HSAN1E, and three others from the extended family. For 50 years Earl has been intimately involved with the struggle with doctors and a diagnosis. He knows the importance of education and opening up channels of communication between science, doctors, patients and family.

Earl
Debbie Helms – Member at Large

Debbie is a widow who lives in South Carolina. She has 2 sons and 3 grandchildren. She absolutely adores her family. Debbie’s husband was diagnosed with what was at one time called Hereditary Sensory Neuropathy which is now known as HSAN1E. He struggled with this disease and suffered with it for many years. He passed away in 1999. Her stepdaughter has been diagnosed with HSAN1E and she is doing quite well. She’s a fighter. Debbie is hoping that her involvement with this organization will help any family or individual that has been stricken with this disease. Awareness is much needed for anyone who is struggling with a rare disease. She hopes to be of help to anyone who needs her.

Earl
Erin Delman – Member at Large

Erin is a student at UCLA School of Law. She learned about HSAN1E at an advocacy event in Sacramento in 2017, where she met Rachelle Dixon. Erin, Rachelle, and Krista Hemming have worked on awareness initiatives in the past. Erin lives with a rare immune deficiency, and so she understands the importance of awareness and advocacy for rare and chronic disease and appreciates the opportunity to contribute to the fight against HSAN1E.

HSAN1E Board of Directors
HSAN1E Society Board of Directors

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